Title

Who’s going to do this when I’m not around?: Parents of young adults with special health care needs speak out on transition

Authors

Jaimie Ciulla Timmons
JP McIntyre
Jean Whitney PhD, University of Southern MaineFollow
John Butterworth

Document Type

Article

Publication Date

1997

Abstract

This report summarizes the experiences and concerns of 6 Massachusetts adolescents and young adults with special health care needs (ages 11 to 22) and 30 family members. The study seeks to understand the issues and needs that young adults and their families face during the transition from school to adult life. The results of six focus groups and three detailed case studies illustrate the variety of challenges and solutions that individuals with special health care needs and their families experience.

Recommended Citation

Timmons, J.C., McIntyre, J.P., Whitney-Thomas, J., & Butterworth, J. (1997). Who’s going to do this when I’m not around?: Parents of young adults with special health care needs speak out on transition. Boston: Department of Public Health, Division for Children with Special Health Care Needs, Massachusetts Initiative for Youth with Disabilities.